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All posts for the month April, 2018

Anemia is hell, or at least the kind I have is. After the hurricane hit Florida last September I started getting sick and never fully recovered. December and January I pushed myself hard with energy drinks, due to traveling and house repairs. I started having headaches every morning that never went away, my heart-rate was constantly high, I was constantly cold and I couldn’t do chores or even cook dinner for myself. Worst part, doctors would blame my issues on my fibro and I believed them at first.

Eventually I blamed the issues on mold. I had found serious mold in my kitchen in January and had to gut the sink area and build a new countertop. When the shitbirds were squatting in my house, the sink had leaked, possible for a couple of years, causing the particle board of the cabinets and drywall behind them to become moldy. After that I gutted part of my office/lab where I had an ant issue, found a small bit of mold, not enough to make a person sick though.

Exposure to that mold would make me sick for a day or two, so it made sense that mold was causing my health issues. I was wrong, as I remained sick and wasn’t getting better. The house was smelling good again, my sinuses were clearing, but I was not in good shape.

With my health was going to hell I quit energy drinks, quitting caffeine helped before. Even after the caffeine detox I started passing out every day. Usually around lunch time or shortly after color would drain out of my skin, I would become extremely chilled, then have trouble remaining conscious. At the worst it caused mental issues, confusion, word slurring, there were a few times that I started babbling pure gibberish. The mental impairment was scary, I could barely function. That coupled with the fatigue attacks causing me to pass out made me realize that I was becoming anemic again.

Everything about being anemic is horrible. I’m not sure what is worse, the weak immune system, infections, lack of sleep, fevers, the exhaustion, or the headaches, but I think it’s that I could only function during the day. By 5pm the fevers would have taken me out of commission, rarely would I feel better before the next morning. Sleep was nearly impossible, five or six hour was normal and upon rising I would have horrible headaches. If I tried to exercise, the headaches would worsen. These weren’t the only major issues I had.

Wounds, from minor to major would become infected, even if I cleaned and treated them. The infections made them itch so badly I couldn’t sleep. Wounds would take a minimum of 3-4 weeks to heal, then leave scars. In addition this was the first time in a few years that I had reoccurring sinus infections.

The anemia really made it seem like my body was falling apart. But once I realized what was happening, I bumped up my B12 and made sure my folate intake was healthy. It has been nearly two months since I was at my worst and I am recovering.

The headaches have gone away, I’m passing out less and less often. My cold tolerance is returning and I’ve mostly kicked the sinus infections. I still get tired easily, prone to low grade fevers (possibly due to fibro), evenings can be hard, but I’m sleeping more also. My heart rate is slowly trending down and my wounds are healing. One of the best parts is that wounds no longer become infected, they just heal with normal amounts of scarring.

Two and one half months left for initial recovery.

Originally written back in November 2017, then never posted due to me getting sick.

 

As a Florida resident I have to keep an eye on potential hurricanes. Tropical storms have never been an issue, unless I need to drive through flooded roads, but hurricanes I don’t mess with. In the twenty years I’ve been in Florida I’ve seen quite a few cat 1, 2, and 3 hurricanes. I’ve had giant old trees fall yards from the house I was staying in, and see roofs ripped off buildings where I have worked. Hurricanes are stressful and post cleanup can be exhaustive, not a good combo when one has Fibromyalgia. While my thirty years old home is in a good location, on a good grid and my street has never flooded, none of that helped during Irma.

Hurricane Irma came through and it was not as severe as it was expected to be, but the local utilities haven’t been maintaining their lines. Before I moved to South Florida the utility lines were always kept clear, after moving back I discovered massive overgrowth across the entire grid. Two months ago I had the power company out to see about doing line clearings, it was scheduled for the end of September, but because of the hurricane they still haven’t done the clearing. Luckily during Irma the overgrowth didn’t damage the lines around my house, but did damage the lines further back in the grid. The power line damage from overgrowth caused us to be without power from before the hurricane hit us through the entire week.

The house itself took no damage during Irma, front yard looked untouched, yet the backyard looked like a tornado went through it. Trees and bushes in the backyard were all pushed westward, branches twisted around branches. My orchid tree took the most damage from the wind, it looks like half a tree now that all the leaves and branches are on one side of it. My lemon tree took almost no damage, although we lost most of the lemons. Most homes in the neighborhood had little to no damage, but there was plenty of yard cleanup.

First day after the hurricane was bearable. Without electricity we had no AC, but the weather had not warmed back up. It was fairly easy to start on limited cleanup and it seemed like I was going to be in good shape. On the second day the Florida summer heat returned, along with mosquitos. We had a tiny generator to keep our fridge running and a fan on us, even still the late afternoon left us overheated and exhausted. Thankfully I kept my Quell unit charged, so while the fatigue grew, the pain was kept managed.

The hurricane hit us on a Sunday night, power was restored to us Friday afternoon. I was struggling to function at this point, having slept only a few hours each night. When power came on, and stayed on, that gave me an adrenaline rush that allowed me put the well system back online, but not much more than that. Over the next few days I struggled to sleep, then struggled to stay awake. I managed to take the plywood off the windows, one window a day.

After that, it took over a month for me to recover. I struggled with sleep over the following weeks, each week sleep improving by a tiny bit. Each day I felt extremely drained, heavily foggy, struggling to do the most basic of chores. I could mostly keep up with work, but at the expense of house chores and personal projects. I flared up bad and was in a flareup for most of October. The flare would occasionally become extreme and my immune system was weak. Got sick a few too many times over the past month. Now it is early November and I’m starting to feel more like myself. I’m able to keep up with my chores and have resume work on my projects. I have good days and I have bad days, but the good days are starting to outnumber the bad days again.

Sleep is so important to manage fibro, the entire body weakens without enough of it. It was a hard recovery, something I hope to not have to go through again. If we get hit with another hurricane I have a nice generator ready to keep a couple of window units running.